Pandemic treatment delays
Ronda was not able to get the treatment she needed for many weeks and took extra steps to shield herself. She followed the government guidance to stay at home. All of her hospital appointments and therapy sessions took place over Zoom or on the phone, and she only ventured outside for a fortnightly trip to the pharmacy and to pick up groceries.
People with chronic drug-resistant infections were not included on the UK government’s list of people asked to shield. Despite their compromised immune systems and susceptibility to new infections, this meant that they were not able to secure priority slots for online supermarket deliveries.
Thankfully, Ronda was able to eventually fill her prescription, but as the levels of infection in the UK subsided, and the country began to unlock at the start of August, she began to feel unwell. The symptoms of her chronic UTI had reduced in severity, she had no episodes of incontinence, but she was bedridden for weeks.
Mysterious symptoms
“I had gone from one extreme to another. I was suffering from unbearable nausea – day and night. I had extreme tiredness, sleeping 20 hours a day. I was weak, my muscles ached, I had recurring headaches, an upset stomach, and a fever. I honestly believed I had succumbed to Covid-19 and truly feared the worst. My mental health was in tatters, I cried most days and I suffered suicidal thoughts.”
Ronda was able to visit a drive-through Covid-19 testing centre. The test came back negative.
“Instantly, the fear of sepsis and all-too real threat of death lifted. Naturally, I thought it was a matter of riding out the storm of whatever bug I might have until I felt well again.”
With the symptoms persisting, and Ronda at the brink of a physical and mental breakdown, she consulted the information leaflet accompanying her antibiotic treatment.
The antibiotics of last resort
“To my horror, and confirmed later by my specialist, this episode of ill-health was a side effect of the antibiotic medication. Although I felt relieved, at the same time I was utterly bewildered that an antibiotic, a tiny white tablet, made me so ill that I was convinced I had contracted Covid-19. Within days of discontinuing the medication, I felt a thousand times better.”
It is an experience familiar to many people with chronic multi drug-resistant infections. For most people antibiotics have few or no side effects, but for those needing treatment with antibiotics of last resort, the side effects can be dreadful.
Ronda has started a different antibiotic treatment regimen and is doing much better.